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Completeness and usability of ethnicity data in UK-based primary care and hospital databases

Mathur, R and Bhaskaran, K and Chaturvedi, N and Leon, DA and vanStaa, T and Grundy, E and Smeeth, L (2014) 'Completeness and usability of ethnicity data in UK-based primary care and hospital databases.' Journal of Public Health, 36 (4). 684 - 692. ISSN 1741-3842

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Abstract

Background Ethnicity recording across the National Health Service (NHS) has improved dramatically over the past decade. This study profiles the completeness, consistency and representativeness of routinely collected ethnicity data in both primary care and hospital settings. Methods Completeness and consistency of ethnicity recording was examined in the Clinical Practice Research Datalink (CPRD) and Hospital Episode Statistics (HES), and the ethnic breakdown of the CPRD was compared with that of the 2011 UK censuses. Results 27.1% of all patients in the CPRD (1990–2012) have ethnicity recorded. This proportion rises to 78.3% for patients registered since April 2006. The ethnic breakdown of the CPRD is comparable to the UK censuses. 79.4% of HES inpatients, 46.8% of outpatients and 26.8% of A&E patients had their ethnicity recorded. Amongst those with ethnicity recorded on >1 occasion, consistency was over 90% in all data sets except for HES inpatients. Combining CPRD and HES increased completeness to 97%, with 85% of patients having the same ethnicity recorded in both databases. Conclusions Using CPRD ethnicity from 2006 onwards maximizes completeness and comparability with the UK population. High concordance within and across NHS sources suggests these data are of high value when examining the continuum of care. Poor completeness and consistency of A&E and outpatient data render these sources unreliable.

Item Type: Article
Uncontrolled Keywords: epidemiology, ethnicity, methods
Subjects: H Social Sciences > HT Communities. Classes. Races
R Medicine > R Medicine (General)
Z Bibliography. Library Science. Information Resources > ZA Information resources > ZA4450 Databases
Divisions: Faculty of Social Sciences > Institute for Social and Economic Research
Depositing User: Elements
Date Deposited: 15 Jan 2018 13:48
Last Modified: 15 Jan 2018 14:15
URI: http://repository.essex.ac.uk/id/eprint/20975

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