Research Repository

Semantics of patient choice: how the UK national guideline for depression silences patients

McPherson, Susan and Beresford, Peter (2019) 'Semantics of patient choice: how the UK national guideline for depression silences patients.' Disability and Society. 1 - 7. ISSN 0968-7599

McPherson_Beresford_Patient Choice_NICE_preprint_2019.pdf - Accepted Version

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Several stakeholders, including the National Survivor User Network and the British Psychological Society, have called for the National Institute for Health and Care Excellence (NICE) to include an up-to-date review of patient experience research in the new depression guideline. In response, the Guideline Committee (GC) postponed publication, the guideline now due in February 2020. Yet the GC also stated it will not review patient experience research. Instead, it will incorporate a new element of ‘patient choice’, without elaborating what this entails. Here, we attempt to untangle a number of similar sounding terms including ‘patient choice’, ‘patient preference’, ‘patient experience research’ and ‘service user involvement’ in terms of how they relate to the NICE depression guideline. We argue that by conflating these concepts and implying that one will serve the purpose of another equally well, NICE risks leaving patients without a real voice, their perspectives buried in semantically void rhetorical jargon.

Item Type: Article
Uncontrolled Keywords: depression, clinical guidelines, patient choice, user involvement, National Institute for Health and Care Excellence, United Kingdom
Subjects: R Medicine > RA Public aspects of medicine > RA790 Mental Health
Divisions: Faculty of Science and Health > Health and Social Care, School of
Depositing User: Elements
Date Deposited: 01 Apr 2019 09:45
Last Modified: 21 Sep 2020 01:00

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