Research Repository

Barriers and facilitators to staying in work after stroke: Insight from an online forum

Balasooriya-Smeekens, C and Bateman, A and Mant, J and Simoni, AD (2016) 'Barriers and facilitators to staying in work after stroke: Insight from an online forum.' BMJ Open, 6 (4). e009974-e009974. ISSN 2044-6055

Barriers and facilitators to staying in work after stroke: insight from an online forum.pdf - Published Version
Available under License Creative Commons Attribution Non-commercial.

Download (1MB) | Preview


Objective: To explore barriers and facilitators to staying in work following stroke. Design: Qualitative analysis of posts regarding staying in work following stroke using the archives of an online forum for stroke survivors. Participants: 60 stroke survivors (29 male, 23 female, 8 not stated; mean age at stroke 44 years) who have returned to work, identified using terms 'return to work' and 'back at work'. Setting: Posts from UK stroke survivors and family members on Talkstroke, the forum of the Stroke Association, between 2004 and 2011. Results: Stroke and transient ischaemic attack (TIA) survivors reported residual impairments that for many had impact on work. Most impairments were 'invisible', including fatigue, problems with concentration, memory and personality changes. Participants described positive (eg, back at work being better than expected) and negative work experiences, including being at risk of losing the job because of stroke-related impairments. Barriers to successfully staying in work included lack of understanding of stroke-in particular invisible impairments-of survivors, employers and general practitioners (GPS), and lack of support in terms of formal adjustments, and 'feeling supported'. Stroke survivors described how they developed their own coping strategies, and how workplace and employer helped them to stay in work. Conclusions: Despite having been able to return to work after a stroke, people may still experience difficulties in staying in work and risking losing their job. There is a need to improve awareness, in particular of invisible stroke-related impairments, among stroke survivors, work personnel and clinicians. This might be achieved through improved assessments of residual impairments in the workplace and in general practice. Future studies should investigate the effect of unrecognised fatigue and invisible impairments on staying in work following stroke, and explore the potential role for primary care in supporting stroke survivors who have returned to employment.

Item Type: Article
Uncontrolled Keywords: Humans; Ischemic Attack, Transient; Adaptation, Psychological; Qualitative Research; Social Support; Internet; Adult; Aged; Middle Aged; Survivors; Employment; Workplace; Female; Male; Young Adult; Return to Work; Surveys and Questionnaires; Stroke Rehabilitation
Divisions: Faculty of Science and Health
Faculty of Science and Health > Health and Social Care, School of
SWORD Depositor: Elements
Depositing User: Elements
Date Deposited: 12 Aug 2019 15:08
Last Modified: 06 Jan 2022 14:01

Actions (login required)

View Item View Item