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Research priorities relating to communication and swallowing for people with learning disabilities across the lifespan

Chadd, Katie and Longhurst, Lauren and Kulkarni, Amit and Simpson, Jaya and Pagnamenta, Emma and Brettell, Fiona and Money, Della and Dowty, Rosie and Wallinger, Josephine and Bangera, Sai and Palmer, Rebecca and Joffe, Victoria (2022) 'Research priorities relating to communication and swallowing for people with learning disabilities across the lifespan.' Tizard Learning Disability Review, 27 (2). pp. 95-104. ISSN 1359-5474

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Abstract

Purpose This research priority setting partnership (PSP) aims to collaboratively identify the “top ten” research priorities relating to communication and swallowing for children and adults with learning disabilities, across the lifespan in the UK, using a modified James Lind Alliance approach. Design/methodology/approach A steering group and reference group were established to oversee the PSP. A survey of speech and language therapists (SLTs) resulted in 157 research suggestions. These were further developed into 95 research questions through a multi-stakeholder workshop. Questions were prioritised via an online card-sort activity completed by SLTs, health-care or education professionals and carers. Research questions were analysed thematically. Ten adults with learning disabilities were supported to assign ratings to themes reflecting their prioritisation. The top ten research priorities were identified by combining results from these activities. Findings The top ten research priorities related to intervention, outcome measurement and service delivery around communication and dysphagia. Originality/value To the best of the authors’ knowledge, this is the first UK-wide research PSP on learning disabilities and speech and language therapy across the lifespan. It uses a novel approach to incorporate the preferences of people with learning disabilities in the prioritisation

Item Type: Article
Uncontrolled Keywords: Research priorities, Communication, Learning disabilities, Intellectual disability, Dysphagia, Speech and language therapy
Divisions: Faculty of Science and Health
Faculty of Science and Health > Health and Social Care, School of
SWORD Depositor: Elements
Depositing User: Elements
Date Deposited: 02 Sep 2022 09:21
Last Modified: 02 Sep 2022 09:24
URI: http://repository.essex.ac.uk/id/eprint/32988

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