Research Repository

The anonymity paradox in patient engagement: reputation, risk and web-based public feedback.

Speed, Ewen and Davison, Charlie and Gunnell, Caroline (2016) 'The anonymity paradox in patient engagement: reputation, risk and web-based public feedback.' Med Humanit, 42 (2). 135 - 140. ISSN 1473-4265

[img]
Preview
Text
The Anonymity Paradox in patient engagement- reputation, risk and web-based public feedback.pdf - Accepted Version

Download (353kB) | Preview

Abstract

The UK National Health Service (NHS) has long espoused patient and public engagement. Recent years have seen increasing use of internet-based methods of collecting feedback about patient experience and public and staff views about NHS services and priorities. Often hailed as a means of facilitating participative democratic patient engagement, these processes raise a number of complex issues. A key aspect of it is the opportunity for comment to be made anonymously. Our research reveals an anonymity paradox whereby patients clearly demonstrate a perception that anonymity is a prerequisite for effective use of these feedback processes, whereas professionals demonstrate a perception that patient anonymity is a barrier to effective use. The risks of anonymity are constructed very differently by patients and professionals. Patient concerns around anonymity were not motivated by a general concern about a loss of privacy, but more that a positive identification might compromise future care. For professionals, concerns were voiced more around risks of reputational damage for specific practitioners or practices (in that anyone could say anything) and also that this anonymous feedback was available publicly and that it might go against the medical opinion of the professional. These concerns pointed to important differences in perceptions of patient and professional vulnerability. In the qualitative analysis that follows the key finding was that while anonymity makes service users feel less vulnerable, it can have the opposite effect on managers and clinical staff. This raises important implications for the use and utility of internet-based methods of collecting patient feedback.

Item Type: Article
Uncontrolled Keywords: Attitude of Health Personnel, Attitude to Health, Confidentiality, Humans, Internet, Patient Participation, Privacy, State Medicine, United Kingdom
Subjects: H Social Sciences > H Social Sciences (General)
R Medicine > R Medicine (General)
Divisions: Faculty of Science and Health > Health and Social Care, School of
Depositing User: Jim Jamieson
Date Deposited: 22 Feb 2016 12:19
Last Modified: 10 May 2018 16:15
URI: http://repository.essex.ac.uk/id/eprint/16105

Actions (login required)

View Item View Item