Exploring audio recording in terminally ill patients receiving hospice care: ‘Stories for Life Charity’ model

Stories for Life is a UK charity that provides a free and confidential service for terminally ill patients to audio record their ‘life story’. Patients are given a copy of the recording, and if they wish, can then pass a copy on to their family/friends. This study explored how a group of ter-minally-ill patients, receiving hospice care, experienced the process of making a voice recording of their biographies. Interviews were conducted with five terminally ill patients and one family member. Study participants found that talking to a trained volunteer provided a neutral, non-judgemental interviewer. Patients reported a feeling of catharsis while telling their story as well as being able to reflect on significant life events. However, it was challenging to convey diffi-cult emotions whilst also being mindful of protecting family who may listen to the recording. Although there was some uncertainty about how the recording would be perceived by listeners, leaving a voice-recorded life account was felt to be beneficial for immediate family members, as well as maintaining a meaningful connection with future generations. Overall, recording an au-dio biography in terminal illness can allow patients a space for reflection and a meaningful con-nection with their families. The study was approved by the London - Harrow Research Ethics Committee, reference num-ber: 19/LO/1460.